Monday, September 14, 2015

Day ONE

We are here! We didn't get off to a very good start. We got halfway to Philadelphia just to realize that we forgot his meds at home. We turned around and drove forty minutes home just to come back again. I thought I was going to kill Kenyon (even though he had nothing to do with it, he was easy to blame). 
  We got to CHOP and it took about thirty five minutes to check in and get settled. We ran into our friend Melissa who will be going through the program with her daughter Paige. We met at keto class and decided to come together for support! 
  After looking around and playing in the playroom, we met with our dietician, Sue who gave us the meal schedule for the week. Cavan will be starting tomorrow morning in a ratio of 2:1. Bacon, eggs, and oil and cream are on the menu for breakfast! Bacon and eggs won't be hard but oil and heavy cream? Ummm....
  We are waiting for the IV team to come in and give him his IV. It's 7:34 and he is already in bed, Jammies on- watching Fresh Beat Band of Spies on the iPad. 
  Overall, Cavan seems okay. Happy. He knows we are here for his Magic Diet. We have read him the book, Gordy and the Magic Diet enough times for him to know there is a monster inside of him (epilepsy) and the diet will make it go away.  
  8:00 now and IV team just left. Cavan is awesome and didn't flinch at all. He just said, "what you doin'?" And "you hurtin' me." But he didn't cry and didn't stop watching the iPad. Off to bed because God only knows what tomorrow might bring.

2 comments:

  1. Best of luck starting this journey!!

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  2. Cavan is so strong because he has his folks to hang onto .... and his IPad! Love Grammy and Bup

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