Just what is this diet all about we wondered??
Monday, September 7, 2015
Why are we doing the Ketogenic Diet?
Pretty much, we are sick of his meds. He was taking a ton of different types of medications just to try and control his seizures. It wasn't working. We had tried Keppra, Depakote, Lamotrigine, Onfi, and I might possibly be forgetting some! And they weren't even working. The side effects were terrible. From screaming for hours to being up all night, losing his appetite, gaining appetite, Aggressive behavior, impulsive behavior- I could go on and on. Now here's the thing. It's stopped his grand Mal seizures. Then he developed Absence seizures and Drop seizures. And no matter what the drug, we couldn't get it under control. He continued to have about five to ten seizures a day on average. So we kept upping his meds (increasing the amount he takes). And the more we increased the better his seizures were controlled. Unfortunately the more we increased his meds we started to lose Cavan. We had trouble controlling his temper. We didn't know how to help his highs and lows. We weren't sure how to discipline his behavior when he would go after his siblings. And then they told us about this diet. And it seemed like the right answer. A way for him to not have seizures and come off the meds? We were quite intrigued knowing that there had to be a catch...
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